Blind Lives Matter

The disproportionate discrimination heaped onto the Afro-American community has inspired the Black Lives Matter movement, campaigning against violence toward black people, and to the broader issues of racial discrimination. Certainly the color of skin prompting bias before you have even said “hello” or exchanged a minute of conversation is absurd, disturbing and diminishes who we are as a species. Yet there it is: if you’re a person of color in a white society, the judging kicks in with amazing speed.

Whether discrimination is learned or baked into our DNA, it seems clear that religious, ethnic, age and gender prejudice is thriving around the planet with no signs of easing up anytime soon. Discrimination, and the fear, rage and violence that broils up from it, continues to be a pox on all our houses.

Prejudgment also applies to the largest minority in our country. Over 64 million, or 1 out of every 5 Americans, live with a disability. However, the prejudice against disabled folks generally takes the form of assumption, dismissal and pity rather than rage.

The most mysterious thing about prejudice is that when it kicks in, it seems to assign a complete set of negative traits to the targeted person. Knee-jerk reactions take hold, and individual personality doesn’t stand a chance. Unless a brief conversation with the prejudger and the prejudged occurs, the whole prejudged person is marginalized and dismissed as unproductive or nefarious.

I felt it myself when I met Danny, a fellow, who at the age of 19, severed his spinal cord when he dove off the mast of a sailing ship into a coral reef. When we first met, I stuck out my hand to shake his. It was limp and without any strength. He was quadriplegic and I immediately figured he was pooched with no ability. Then he invited me out on his sailboat which was rigged so that he could manage the boat himself. Good thing – I’m useless when it comes to trimming sails. He moved to L.A. to pursue a career in acting, appeared in several films, and started up an enterprise helping businesses to become ADA compliant. Danny and I would sometimes step out together – I’d grab the handles of his wheelchair and he would tell me “left and right and stop.” We were a motley crew and remained lifelong friends.

People who casually meet me for the first time generally resort to some blind man stereotype or worse, pity. They will quickly grab my bag of groceries as if my hands are broken or tell me how sorry they are for me. People who do get to know me are at first surprised that I’m a professional actor, president of my local actor’s union, have been a VP of Sales and Human Resources, a playwright, a poet, a songwriter, have two kids and do my own grocery shopping. To them it’s “amazing.” To me, it’s just what I do.

It’s important to make a distinction between having a disability and being disabled. Having a disability means having only one broken something; being disabled suggests you are entirely broken. As I often say, “I’m not disabled, I’m just blind.” I get stuff done by other means.

Like most of the disabled folks I know, their particular disability tends to “disappear” to people who spend time with them, and their abilities emerge, dominate and defy the preconceptions.

Disability isn’t a tragedy. It’s just another way of living. And it matters.

Certainly a world without prejudgment is desired by most people, but people who experience discrimination of any kind don’t live in that sort of kumbaya bubble. I figure it will take several more turns of evolution before our species enlightens to a more inclusive mentality, where tendencies toward stereotype and bias are eliminated from the gene pool.

Until then, we must strive mightily to embrace the notion that there are better ways to deal with the ire that boils up from dated assumptions that marginalize the groups of people who breathe and dream outside our tribes.

For now, we might just try saying “hello” when we first meet someone who appears ‘different.’ And we may find out just how similarly we all dream.

Steve Gladstone

The Blind Dude

Gettin’ it done by other means.

Learning New Stuff

I’ve never been a ‘read the owner’s manual’ kinda guy. I’ve always found them confusing, tedious and lengthy.

I used to have a pal who would read every owner’s manual from cover to cover. But I had, as my mother used to say, more of a “creative” mind.

Even when I could see, I didn’t read manuals. I was always a “visual learner” when trying to figure out how to operate stuff. So when I went totally blind, I was pooched.

As a blind guy, I still avoided screen reading online manuals. I preferred to have somebody ‘talk me through’ each button and crank. Sure, it was a struggle, but I was determined to master every bell and whistle on the device.

The struggle got worse as I grew older. Even my $10 toaster, between the frozen, regular and bagel settings and the light, medium and dark knob, became a chore. I figured that being blind exacerbated the learning process.

Then I started noticing my sighted friends calling out to their teenage children: “Hey Sam, show me how to use this remote,” or “Yo Jennie, help me figure out my new electric toothbrush.” It was an Aha moment! The problem wasn’t being blind, it was being over 40.

Not that I ever needed a reason why I didn’t read manuals, but now I finally had a good one.

Besides, why was I trying to learn all 128 buttons on the gismo when I only ever use 5 of them in the first place?

I was suddenly at the gateway to the next level: tranquility, self-actualization and spiritual enlightenment…with a little more time on my hands.

The desire to learn new things dramatically decreases for most people after they turn 40. Many folks believe this is due to the natural diminishing capacity of the human brain, but I’d like to think it may actually be the result of enlightenment. In other words, once you reach that age when you realize that you’re no longer receiving blue ribbons for effort, you trade in your sense of accomplishment for a little efficiency. You suddenly grasp the notion that all the time you spent agonizing over how to work the damn thing might have been better spent dreaming about the little vegetable garden you’ve been meaning to plant in your backyard.

Now I have a go-to-under-40 person to set up my new appliance and show me how to use the latest whizzbang technology with the fewest steps possible.

Keeping it simple is king. I no longer type my destination into my GPS. Instead, with my guide dog in tow, I just mash a button and speak into my phone where I want to go and voila!, the nice droid-lady answers me with step by step directions on how to get from point A to point B. (I can also assist some of my drivers who have difficulty using GPS. Yup, most of them are over 40.)

You may find it more satisfying to ask a stranger under 40 for help with a new gadget, rather than your go-to-under-40 family member. Strangers tend to be nicer and more patient. Family members are prone to be a little quippie during the education process, sometimes rolling their eyes or tossing you zingers like, “You don’t know how to do that?” or “I’ve shown you this a million times!” Of course, if you are a secure person with few self-esteem issues, quippie’s wisecracks don’t bother you. You just say, “Yeh, I’m a blockhead. Fix it.” That’s about all you need to do to get the quipster focused on the task.

If you have the impulse to explain to quippie why you aren’t ‘getting it,’ save your breath. They don’t care if you get it or not. And at your advanced age, you need to lower your stress level. Plus, by not explaining yourself, you have extra time to do something useful, like top-up your soft soap kitchen dispenser which has been empty since last month.

So, with your Millennial or Gen Z of choice and your own good self-image, you’ll have that new “Power-Your-Spaceship-To-Mars-With-Solar” app downloaded and up and running in just a few short minutes.

But before you blast off to worlds unknown, you might consider tending your garden first.

Steve Gladstone

The Blind Dude

Eating Ants

The other day my daughter came over for a visit. I was in my den when I heard her calling out to me from the kitchen: “Hey dad, there are ants all over your chocolate candy.”

Yikes! I had a flash memory from the night before, eating a couple of pieces from my box of Valentine chocolates which I had been rationing and now was almost empty…except for the ants.

I quickly got to thinking about any weird science I might have swallowed in the past and recalled how I thought the sliced ham I had for lunch earlier tasted a little tangy. When you’re a blind dude, bad strawberries and sour milk are simple to detect, but ant-covered chocolates, not so easy.

I started wondering why I was still alive.

I suppose at their most basic level, ants are protein.

Then I remembered Steve McQueen’s character in the film Papillon, mashing up and eating insects while detained in a French Guiana prison. It didn’t kill him but rather helped sustain him for two years while being held in solitary confinement. I was starting to feel better.

Certainly in some parts of the world, local cuisine includes beetles, grasshoppers and other insects which are dried, fried and covered with seasonings. Desserts include tasty tidbits like Chocolate Covered Scorpion and Chile-Lime Crickets.

According to one source: “…80% of the world views insects as normal food; it's only nations in Europe, Canada and the USA who balk at the idea.”

Was I ahead of the curve?

A quick surf on Google will bring you to organizations that promote the eating of those creepy little critters. One such association boasts: “Eat Bugs, Save the Planet.” There are ‘Bug Festivals’ dedicated to educating us about the nutritional benefits of edible insects.

Notwithstanding the challenges of world hunger, the rising demand for meat, overfishing, current farming practices damaging the environment, polluting the water and air and contributing to the rise in infectious diseases, it may be time to change the way we view food.

Back to what we eat.

I thought about a nice steak – cooked cow, really? Who’d want to eat such an odd looking animal? And sushi…? Hmm, raw fish. Then it hit me: maybe as long as what we eat is dead, it works. Or at least is more appetizing.

We don’t eat living stuff. But lots of other creatures do. Snakes eat live rats, lions eat zebra, lizards eat flies, cats eat lizards, and blind dudes eat ants. No big whoop, eh?

Good thing those big bug movies like “Them!” (a nest of gigantic irradiated ants storming L.A.) and “The Fly” (a scientist mutating into a human fly) are just Sci-Fi. Otherwise, we might also be on the menu.

Dead or alive, food is necessary for survival. And eating responsibly is a worthwhile consideration.

Perhaps someday we’ll hear public service announcements like: “Promote healthy eating and sustainable farming with tasty & edible insects. Eat a bug!”

Until then, I won’t be dusting my chocolates with little ants anytime soon, but won’t freak out if I munch a few along the way.

Steve Gladstone The Blind Dude

Blind Man Goes to the Ballet

Photos by Aida Zuniga

Perhaps the last form of theatrical entertainment to attract a blind person would be the ballet: no speaking, no singing, just dancing.

However, thanks to technology, I can now understand the fascination with sugar plum fairies dancing in your head.

Like so many Baby Boomers, I was first introduced to Tchaikovsky’s Nutcracker Suite, a truncated orchestral version of his Nutcracker ballet music, while watching Disney’s Fantasia. Of course, Tchaikovsky crafted the Suite as a purely symphonic piece where the ballet is a feast for both the eyes and ears.

inside a toy box

The first characters most Boomers actually tied to The Nutcracker were the animated fairies, fish, flowers, mushrooms, and leaves from Fantasia (1940). The Nutcracker ballet didn’t really become a popular annual tradition in this country until the 1960s, the result of George Balanchine's staging, adapted from E.T.A. Hoffmann's tale, “The Nutcracker and the Mouse King.”

The animated images from Fantasia probably remained with me longer than most people, since I actually saw the film but was totally blind by the time I first attended the ballet.

Those fluid, colorful and quirky animated characters from the movie morphed back to their original forms in the ballet: the dancing mushrooms in the “Chinese Dance” routine (credit the Three Stooges as the model for the animation) became a nimble Chinese danseur leaping out of a box 3 feet into the air; the mesmerizing goldfish who used her flowing tail as a veil became one beautiful barefoot Arabian babe in a gossamer skirt and cascading veil, using her sensuous and controlled movements – arching her back, turning around on one foot and moving in serpentine  patterns – to touch her head with one foot and stretch out like a cat; a plant with its stem body and leaves for arms and legs became an acrobatic Cossack who jumped through a red, white and green striped hula hoop.

So how does a blind man know all these details? Elementary, my dear Watson: audio description.

With a FM receiver around my neck and an earpiece in my ear, a live narrator at the Arsht Center’s Ziff Ballet Opera House in Miami described the action on stage, transmitting it to me in real time as the music played and the dancers danced.

It was also helpful to have a “touch tour” before the show, giving size and shape to many of the stage props and costumes. I did enjoy communing with the Mouse King’s head and body armor.

holding the Mouse King's tail off suit of armor

I never knew it was snowing at the top of the ballet and that several guests arrived with their children at Dr. Stahlbaum’s home. I didn’t know that a father picked up his little daughter to admire the Christmas tree lights or that the grandfather clock lit up when it struck eight.

I learned that the mysterious Drosselmeyer was dressed in a black cape and top hat, and brought with him several large toy boxes; his first gift being two wind-up dolls, Harlequin and Columbine, who soon performed a sprightly arabesque, which enlightened me as to why the audience was applauding.

I had a serious ‘duh’ moment when I found out that Drosselmeyer was cracking nuts with a wooden nutcracker and passing out the nuts to everyone. My inner voice clarified it for me: “It’s The Nutcracker ballet after all, you knucklehead!”

Marie’s brother Fritz grabbing and stomping on the nutcracker was another important piece of otherwise missing info. Drosselmeyer sneaking in as Marie slept, repairing the nutcracker with a magic tool which he “twisted this way and that,” placing it back gently in Marie’s arms, continued to add layers of dimension to Tchaikovsky’s wonderful music.

Subtle descriptions like “the guests hand their coats and wraps to the maid” and “Frau Stahlbaum kisses Marie on the forehead and takes her candle” and “the Prince places the Mouse King’s crown on Marie’s head” added nuance I would otherwise have missed.

Steve arghs with full face Mouse King

Of course, as the music swelled and a large group of mice surrounded Marie “while the lights flashed wildly on the Christmas tree as it started to grow and grow towards the ceiling,” I got the distinct impression the plot was thickening.

Yup, the Calvary came over the hill – the now full-sized Nutcracker rallied the troops of toy soldiers against the rat pack. Kudos to Marie for throwing her slipper at the Mouse King to distract him long enough for the Nutcracker to run him through…and it’s a good thing I found out that the Nutcracker turned into a Prince after the battle.

The only thing better than a snowflake dancing en pointe is sixteen snowflakes dancing en pointe “leaping, swirling and twirling across the stage, forming various patterns on the floor, then taking delicate steps with graceful arm movements and pirouetting into a V-shape.”

How else would I know that The Sugar Plum Fairy found out about the “terrible fight with the mice and their King and the Prince’s transformation from Nutcracker to Prince” if he didn’t “act it out to Sugar Plum with gestures?”

Certainly the "Dance of the Sugar Plum Fairy" was a delight, “her movements exquisitely timed to the mysterious fairy music, imbued with a celesta, twirling upstage” before summoning all the sweets and friends to dance in celebration for Marie and the Prince. The festivities included ten foot tall Mother Ginger, in her enormous purple, green and scarlet costume, with her seven children, the Polichinelles, emerging from under her hoop skirt to dance for our heroine.

A highlight was the "Waltz of the Flowers" where, along with the corps de ballet, Dewdrop danced the extravagant waltz and, according to my narrator, “The large flowing movements and leaps were graceful, even though the music was robust.”

The Grand Pas de Deux between Sugar Plum and her Cavalier, Prince Coqueluche, with its divinely romantic underscore, apparently galvanized the audience. I now know that the Prince helped his “beautiful companion” spin en pointe and then she “leaped and he spun her around and sat her on his shoulder, lifted and held her by the waist straight into the air, and then held her straight on an angle with her feet barely touching the floor.”

After the grand finale, full of abundant color and activity, Marie and the Prince “appear in a sleigh, heading off to the land where the sun meets the moon.”

And I too was over the moon after knowing what the heck was going on.

If you would like to learn more about the audio descriptive service at the Arsht, go to: http://www.arshtcenter.org/

full-sized Nutcracker head

Insight for the Blind was thrilled to produce recorded audio description for the first time in 2015!  In collaboration with the Miami City Ballet, Lighthouse of Broward, and the Broward Center for the Performing Arts, Insight recorded and produced audio description which was made available each night that live audio description was not possible.  Through the partnership of these agencies, 100% of these Nutcracker performances were made accessible, through audio description, to the blind and visually impaired.  We look forward to many more such collaborations in 2016, and beyond!   -Matt Corey

Kinky Boots

Photo credit:  Aida Zuniga I’ve groused aplenty about how the world doesn’t have blind folks at the top of its A-List, so now it’s time to give credit where credits due.

More and more devices and services are coming online that enrich the lives and experiences of blind folks and those with low vision. Technology is moving well beyond computer screen readers and talking thermometers, especially in the world of entertainment.

Several years ago, the first round of “video described” movies made it possible for blind folks to know what was going on between the dialogue. The original Star Trek films and Pretty Woman were among the first few titles where narration, carefully synchronized with the actors' words and motions, was added to the soundtrack after the film was shot. This made blind movie fans aware of the nonverbal action on the screen. I recall a specific narrative in Pretty Woman when Richard Gere is first driving with Julia Roberts in his rented Lotus: “She reaches over and feels his crotch.”

There are now thousands of films and TV “described” shows available as MP3 downloads. (All you really need is an MP3 player and the sweetened audio track of the film unless, of course, you are watching the video with your sighted girlfriend.)

Methinks in a real sort of way, the added narration is a show unto itself. One can only imagine the colorful narrative to the Game of Thrones. Yup, it’s all there.

Even my local movie theater complex offers video description for those first run films that are released with the pre-recorded narration, though the technology can be a bit finicky and doesn’t always work.

Comcast now has its X1 Entertainment Operating System which speaks aloud the channel, current program, and reads the TV guide and controls for programming your DVR. For those TV shows offering video description, many from PBS, blind and low vision users get increased access to the action on present-day TV.

And now, like Santa, Broadway with audio description has come to town.

On any given Sunday matinee, Florida Grand Opera, the Miami City Ballet and many of the musical roadshows presented at the Arsht Center in Miami are audio described with a live narrator. Unlike recorded films and TV, describing live shows has some synchronization challenges since the pace of the action may vary from performance to performance. It requires the narration to be matched to the action in real time by a breathing person via a FM transmitter to a receiver headset worn by the patron.

I just attended the national tour of Kinky Boots, a Broadway musical based on the film of the same name, The inspiration for which came from a true story about a young man (Charlie Price) who inherits his family’s shoe factory and, in order to save the business from bankruptcy, converts it from making fine men’s footwear to producing red thigh high boots for drag queens and fashionistas.

So, how did I know the boots were red? Read on, Macduff.

First off, a pre-show backstage ‘touch tour’ of some of the props and set pieces offered up the first sense of dimension for the blind experience. Grabbing hold of a pair of kinky boots was, well, kinky.

Steve smiling with kinky boot

When there’s dialogue, you have the sense of what’s happening, but when there is silence between the actors, or the actors are singing or dancing, the action is totally lost on blind folks.

As a pumped up Charlie sang about the steps he needed to take to make the prototype boot to serve his underserved niche market, he pulled a piece of leather out of a bucket and began to fashion the first boot; there was a sewing station and a production area on stage around him. I knew all this because of the narration I heard through my earpiece as he sang. The driving tune suddenly became three-dimensional with the descriptive imagery planted squarely in my mind.

After a few false starts and some helpful design tips from the lead gender bender, Lola, singing “The Sex is in the Heel,” the factory workers later raised the roof as the first pair of "kinky boots" was finally completed. The sexy lyrics were even sexier knowing that one of Lola’s backup drag dancers, one of the “angels,” did a full split in heels and another did a backflip; the excitement was more exciting knowing that dancers shimmied and swiveled in “halter tops, short shorts and work boots” as the first completed boot was revealed. Everybody (me included) shouted “yeah, yeah!”

The spoken cues indicated more depth of character when factory worker Lauren “moved in close to Charlie’s face and was reluctant to remove her hand from his thigh” as she sang of her history of choosing the wrong guys, even while falling in love with Charlie. Descriptions of the subtle gestures and facial expressions between Charlie and Lola added an emotional dynamic as they discovered their similarly complex feelings toward their fathers. Knowing that Lola exited the nursing home “straight and proud” in her white dress, after singing to her estranged wheelchair-bound dying father to hold her in his heart, added the otherwise missing element of both love and defiance.

The graphic description of Lola’s provocative moves while proving that she was closer to a woman's ideal man than was Don, the foreman and her heavy-set macho antagonist, enhanced her song and dance with some tasty spice. After challenging her to a boxing match, the ‘slow-mo’ blows that Lola landed on Don in the boxing ring was the only way I knew who was winning the fight. Without the verbal cues before Lola and the angels arrived to save the day, I would never have known that Charlie stumbled more than a few times on the runway while modeling his boots during the Milan industry show.

While attending a play or musical, it’s often a big mystery to me when scenes change. When the scene shifted from the shoe factory to London to a pub to a boxing ring to the runway in Milan, I was knocked out with a greater sense on what the heck was happening on stage!

Steve with astonished kinky dancer with boot in the air

Without the narration, how else would I have known that the hefty Don, now Lola’s ally, showed up on the runway in Milan wearing a feminine blue outfit and boots?

Oh yeah, also while in Milan, one of the angels who saves the day was “dressed in a British flag, wearing 2 and ½ feet thigh high red kinky boots.”

That’s how I knew they were red.

Timing is Everything!

Photos by Aida Zuniga So I was in Nicaragua on Wednesday soundseeing and heard a faint but distinctive grumbling coming from the belly of this volcano.

I checked it out and smoke started to rise behind me and I figured it was time to get out of Dodge and rustle up some barbeque. Good thing I did or it might have been me on the menu.

Steve Gladstone

The ‘alive and well’ Blind Dude

Why Does a Blind Man Visit the Grand Canyon?

Why does a blind man visit the Grand Canyon?

To hear the sights of course.

I recently signed up for a tour from Phoenix to the Grand Canyon and to my delight it included non-stop narration over the 6 hour trek to the big abyss. Picked up some useful information and some pretty good food along the way (though I did not try the cactus fries).

Becoming the 48th state in 1912, most of Arizona’s land remains unspoiled; you pass through the desert dotted with cactus and head north through forests of pine, fir, and spruce trees. Large swaths of undeveloped land belong to many Native American tribes including the Navajo Nation. I was impressed to find that so much of Arizona’s reservation land remains casino free – unlike so many reservation hosted casinos around the country that give new meaning to “pay back.”

On our way to the canyon, we stopped in Sedona – a funky little town with metaphysical shops, talismans, vortexes, and celebrity vacation homes – a sort of Key West of the desert.

I’ll attempt to shrink the Grand Canyon’s long history into a short sentence: The Colorado River is a chisel that carved out the Grand Canyon over the past 6 million years, steadily cutting layer after layer of sediment into a channel that is 277 miles long, ranging in width from 4 to 18 miles with a vertical depth of more than 1 mile.

The outcome is a splendid example of erosion. The immense gorge is one of the seven natural wonders of the world, is visible from outer space, and boasts 5 million visitors annually. It is a wilderness of rock, light and shadow.

Bottom line: I didn’t see much.

I couldn’t see the massive wingspan of the condor, nor glimpse deer, elk, mountain lion, raven or antelope, nor any of the 2,000 varieties of plants that populate the canyon. And, of course, I missed seeing the depths below.

However, though the sights were vast, so were the sounds. I cottoned to the many languages I continuously heard floating in the air within 5 feet around me – a mashup of accents from foreign countries like Japan, Germany, France, Australia, Russia and Kansas.

I visited the eastern and southern parts of the South Rim of the canyon. The soft cool wind kept surrounding me like a garment as I moved from point to point, wearing the breeze like a linen jacket at the Desert View Watchtower and then like a spooky cape at Yaki Point. I intoned a sublime meditation at Yaki as the environs took over my body and brain.

[video width="320" height="240" mp4="http://www.insightfortheblind.org/blog/wp-content/uploads/2015/11/Yaki-Point.mp4"][/video]

I loved the blustering gusts at Mather Point even though I missed the sunset doing its slow dance with the vast cavern. I missed the sunrise too because I was asleep back in my hotel room.

Many visitors asked me if I felt anything awesome. I know they wanted the blind man to sense something grand. I did not want to disappoint them, so I channeled some down home Native American ideals I had just learned and waxed on about an “expansive spiritual space governed by Mother Earth and Father Sky and how we must work not ‘off’ the earth but ‘with’ the earth and how we must govern our behavior in a deep sort of way by asking how what we do to the land today will impact seven generations from now.” Some folks were mystified with my answer. So was I.

I felt a little bit like Kokopelli, the mythical formidable story teller and prankster who wanders around the Southwestern states playing his flute. (In full disclosure, while visiting a Navajo reservation I did buy a flute made of handcrafted birch wood, which sounds pretty nice.)

A friend looking at some of the pictures my girlfriend posted on Facebook said, “Holy c--p! Don’t look down.” I did look down but didn’t see anything. I’ll try again tomorrow.

And that’s just it – many nights after I crawl into bed, I wonder if I’ll wake up in the morning being able to see. And if that should happen, I plan on racing back to the Grand Canyon, though I might just shut my eyes when I get there.

Steve Gladstone The Blind Dude

All photos and video by Aida Zuniga

Where is There?

Today there are only about 39 million people in the world who are completely blind, which is about ½ of 1% of the world’s total population. We are not talking about visually impaired people who use corrective lenses or cock their heads this way or that to pull something into view; we are talking gold standard blind – people unable to see zip… nada, nothing.

Since 99.5% of the world’s population can see, most people never come face-to-face with a completely blind individual and consequently get no practice interacting with totally blind folks.

I used to be amazed at how inept or awkward people were around me after I lost all my sight. It’s like I had an exotic skin disease when people went to guide me. Typically they’d grab my hand or wrist and proceed to drag me along as if I was a large stuffed animal.

When I ask where the pitcher of lemonade is or where I should sit while waiting for the doctor, I’m frequently told, “Over there.” Where is there, exactly? The similar phrase, “Sit over here,” isn’t much help either. “Go that way” also isn’t a useful direction for a sightless person.

The key problem for blind people (besides not being able to see) is that most of the world isn’t blind.

The disadvantages of being sightless in a sighted world are many, most likely due to the fact that people who invent things are not blind and don’t think about building products and providing services with the blind in mind.

Even buttons to press or knobs to turn that can be helpful to sightless users are disappearing from appliances and credit card swipers. My local supermarket just replaced their keypad pay stations with touchscreens, making it impossible for me to complete the checkout process myself. Ovens, microwaves, thermostats, countless other appliances, even vending machine operational buttons and knobs have slowly been replaced with digital displays, making most of them inaccessible for sightless people. (Gotta give a shout out to Apple Inc., the exception here, for designing their goods for blind users with lots of accessibility built into their products.)

This refrigerator has a lot of options...for a sighted person.

When I’m listening to the TV and hear, “Just call the number at the bottom of your screen for your 30 day supply and we’ll pay the shipping,” or the message says, “Just call 1-800-GOFEDEX,” you know these knuckleheads aren’t thinking of their blind customers.

Ironically, some banks do provide Braille instructions on their ATMs, but in the drive-through? Really? So, they want the operator of the vehicle to throw it into reverse and back up into the drive-through lane so that their blind passenger can reach out and touch the nicely brailed panel of instructions? Or maybe the bank execs intend this accommodation for the blind folks who are out and about on their roller blades with their guide dogs.

Braille in the drive-thru? Hmm.

Since most people don’t have a family member or a friend who is a real-deal blind person, they get no practice with what sightless individuals consider to be the no-brainer rules of engagement: don’t grab and drag, don’t say “over there,” announce all the digits of the phone number, etc.

The other day I went to the podiatrist with a pain in my big left toe. When the receptionist (who learned I was blind when I signed in) called my name, my friend led me to the door leading to the examination rooms. I was standing there quietly in the doorway when the receptionist told me to go down the hall and enter the second door on the left. I smugly replied, “Which way?” She said, “Over there.” (cricket…cricket…) I grinned wryly and she said, “Oh, walk down that way about 20 feet (Ha! I’ll bet she was pointing too!) and take a left into the second door.” My friend realized what was happening (or not happening), offered me his elbow and led me to the examining room.

I later realized my own prejudice – I assumed medical professionals would know better. Then again, most, maybe all, of their patients aren’t blind. No practice dealing with blind folks, like the rest of the world.

I made my follow-up appointment and the receptionist announced to my friend that I needed to return in 2 weeks. Did she think I wasn’t going to tell him? Really? This is similar to the server in a restaurant who will ask my girlfriend if I would prefer the broccoli or string beans with my chicken and rice. She points to me and says, “Ask him. He’ll know.”

Curiously, when I’m speaking on the phone with somebody I’ve never met and my blindness comes up during the natural course of the conversation, they often say, “You don’t sound blind.”

I’m still not sure what sounding blind is supposed to sound like.

Steve Gladstone

The Blind Dude

Blind Is the New Sight

When you were a child, did you ever close your eyes and imagine flying like a bird, or picture what was at the end of a rainbow, or shut your eyes to make a wish while you were blowing out your birthday candles?

As adults, we take a workshop with Tony the empowerment guru who has us close our eyes and visualize where-we-want-to-be-in-five-years, or we complete our yoga class with our eyes closed as the yogi leads us on a guided meditation.

Why with our eyes closed? Can’t we get there with them open? Does sight somehow prevent us from fulfilling our wishes or reaching the higher plane of our inner-universe?

While we’re asleep our eyes are closed and those vivid dreams appear, sending meaningful messages to ourselves. Sight is turned off even with our eyes wide open via a daydream, where we are transported to the outback thousands of miles away from the boardroom.

When we listen to a book on tape or read a novel, sight isn’t a factor. Instead, the spoken and written words spark our imagination, our mind’s eye surveying the colorful images and landscapes in our head. Our imaginings can sometimes be so potent that they leave us disappointed in the movie made from the book. Perhaps what we see is trumped by what we think.

You also get more out of your other senses when you’re sightless. We may hear more of what someone says because we don’t get distracted by something we see going on around them; you tune into the tone, tempo and rhythm of what they’re saying and pick up the meaning between their words. Touch becomes more satisfying as you check out the shape, weight and texture of items (and people too if you get lucky!). Your sense of smell is heightened into a fragrant blossom when you’re not distracted by the beauty of the flower.

Certainly we all want to see, but sight does come with its limitations. It shapes our immediate thinking and can create a barrier to our deeper self. If we don’t see the fancy car they drive, or the short skirt, or the missing teeth, we may indeed become a little less timid or shy or snobbish and a little more relaxed and real with the people we meet.

If pictures were eliminated from online dating websites, what would be the outcome? Pandemonium that leads to better results?

Going on a ‘blind date’ implies risky business. Sight unseen may lead to disappointment. However, let’s face it, when you’re on that first date, you’re looking your best and on your best behavior; sight may actually be misleading if we don’t begin to get beyond that scrubbed and shining first impression. Half of all marriages wind up in divorce, usually for reasons that don’t meet the eye. When you’re blind, you focus on the voice which can be a better lens to the soul. For the record, all my dates are blind ones.

Sight can certainly promote discrimination, triggering those biases we carry in our heads when the people around us look and move differently than we do. When you’re blind, you don’t prejudge the abilities of the guy you just met in the wheelchair.

If most of the world was blind, things might be more peaceful. There’d be less discrimination since color of skin wouldn’t trigger aggressive actions. War would be reduced and possibly eliminated since we wouldn’t be able to see the enemy, or at least take accurate aim.

Perhaps the world would be a little less hostile if we all were a little more blind.

When you do without sight, there are plenty of advantages. Everybody speaking on the phone is virtually blind: how convenient it is for those who have home-based businesses to strike deals while sitting in their Jockey shorts.

You save a lot of money when you’re blind. You tend to buy only what you need. You’re not tempted to grab the stuff around the checkout counter of the grocery store, or the items down the aisles of the drugstore as you head back to the pharmacy, or the attractive sweater you don’t need but have to pass by in order to get the pants which you do need.

So we dutifully and happily shut our eyes and let out a long sigh as we hunker down into our yoga mats, improving our mood, muscles and digestive systems.

The Seven Steps

Blind folks and old folks have something in common: they prefer their own bathrooms. One exception is the airplane lavatory. It’s very efficient for a blind person. Everything you need is nailed down – soap pump to the left of the sink, paper towels to the right, trash shoot below the paper towels. And all within reach.

Going out and about in public is something we all need to do from time to time, say, to take in a movie, travel to Boise or hit the pool hall. Generally, unfamiliar bathrooms can be tricky for blind folks.

First off, if you’re a blind guy out with your girlfriend or wife, which bathroom do you choose? Today, many large theaters and buildings have a family restroom. No-brainer here. In you go. But, in loo (mandatory pun!) of the family bathroom, you usually have a choice of either the men’s room or women’s room.

I have found that most men don’t care if a woman is in their restroom. However, if your female companion is wary of entering the men’s john, she’ll plant you inside the door where you promptly announce: “I’m a blind dude. Can someone guide me to the urinal?” Guys are usually happy to do so, then lead you to the sink, Johnny-on-the-spot with the paper towels, and then offer a helping hand to the exit.

I actually prefer entering the women’s bathroom with my girlfriend – it’s easier to navigate when you’re with somebody familiar. Of course, there are times when a lady inside the restroom protests my presence there. To stem the ‘outrage,’ I usually ask her where she studied Criminology and then congratulate her on recognizing me as a nefarious rascal.

If you wind up alone in an unfamiliar restroom, say in a restaurant or office, there are seven steps to follow before you get down to business: you must first locate 1) the toilet, 2) the flusher, 3) the toilet paper, 4) the sink, 5) the soap, 6) the paper towels and 7) the trashcan. (Oops – the eighth step is remembering your way out.) If you’re in a hotel room, add the bath towels, the floor mat, the shampoo and then work your way to the bed, the thermostat, outlets for your adaptors, the room phone, the TV remote on/off and volume/channel buttons, the do-not-disturb sign and where to unplug the clock radio which was set to go off at 4:30 a.m. by the previous guest.

Flushers keep it interesting. In the airplane lav, the 4-inch square flush panel is a relatively easy target to tap with the toe of your sneaker while you’re washing up. The joystick or handle flushers on your standard commodes are a matter of which side their situated on. The newer toilets with the push buttons are a little trickier – especially when there’s two buttons.

Automatic flushers can be problematic. While standing in relief mode, you search for the flush handle with your other hand. Finding none, you back away hoping to hear that familiar ‘click-whoosh’ sound. Similarly, the auto sink and soap dispenser can be a bit frustrating, especially when one doesn’t work or you can’t find the sweet spot for engaging the auto-response mechanism. (I am told this often isn’t easy even for sighted folks.) You cup your hands under the water spigot. Nothing. So you search for the water handles or push on the soap nozzle, and nothing. You unwittingly repeat this process several times – similar to the way you retrace the same steps 18 times at home when you can’t find your wallet or keys. Finally, it dawns on you to work your way to the next sink where you repeat the dance and hopefully wash up. You also figure out it’s an automatic towel dispenser as a little paper towel finally comes buzzing out after frisking the entire metal box for its nonexistent lever.

Of course, none of these strategies are perfect. Once, I was in a high school bathroom and (as I always do) first measured the target urinal to center myself for optimum aim. Starting with my palms together about waist high, I slowly widen them until the backs of my hands touch the outer edges of the porcelain. This helps to measure the width of the urinal for proper centering. As I was emptying my bladder, I slightly moved my feet and heard the faint splashing of a shallow puddle of water beneath my sneakers. Yep. I had positioned myself in front of the wall between two urinals.

Steve Gladstone, The Blind Dude

I am Orange

Here’s how a certain color, orange in particular, manifests itself in the brain of the blind dude…as a poem. I Am Orange

I am orange. Not an orange, though I like the way it tastes.

I am the blossom of clouds on the horizon at sunset and the first beam of sunlight blessing the morning.

I am the sun passing from portal to portal, dividing the sky and defining time.

I pull the best from the colors that flank me: the romance out of red and the risk out of yellow.

I am the complexion of fire, warming as much as possible, burning when I need to burn.

I am the thoughts of a newborn child who has yet to know language, with little to mediate his surroundings, longing to know his world.

Halloween runs through my veins and keeps me in a nice dark place where I can get a thrill, a chill and a shrill, reminding me that dark isn't deadly.

On those rare days when all’s well – the weather is a breezy 72 degrees, everyone is helpful and friendly, two old problems are solved and the bills are paid – orange is what I am.

Missing Color

There are certain things you miss after seeing perfectly well and then becoming totally blind. It goes without saying that your children’s faces are at the top of the list. Certainly watching football and looking at a beautiful woman make the grade. Reading labels on cans and washing instructions on clothing are also included on this unusual roster. But color is a very special and peculiar line item on that daunting list of things you miss.

I remember being in my late 20s and catching a shot of vivid blue in the bottom corner of my right eye. It was both shocking and wonderful – shocking because it had jolted me into realizing that I had not been seeing color for quite some time, and wonderful to see some color again. Though I hadn’t been seeing color for years, it strangely never entered my conscious mind that I had lost it.

Losing color is something entirely different from losing vision. Curiously, colors continue to paint the walls of your memory long after they have disappeared from your sight. I remember vibrant reds, crisp greens and brilliant blues. I still recall the pastels of pinks, oranges and yellows evaporating into the horizon of the setting Key West sun.

As a child, I lived in Coral Gables, down the street from a fellow named Anthony Abraham. Mr. Abraham owned a huge Chevrolet dealership and had one of the biggest houses in the neighborhood, complete with a sprawling manicured garden. Every Christmas season, his house and garden was adorned with soft blue bulbs, a life-size animated Santa, flying reindeer, a singing choir and, most vividly, a huge tree strung with brilliantly multi-colored blinking lights.

Between every Thanksgiving and January 1st, This twinkling display (and also another large, beautifully lit house across the way, no doubt keeping the Abrahams on their holiday lighting toes), turned my otherwise sleepy little neighborhood street into a bustling highway with cars rumbling toward and away from the magnificent glittering tree that people from several counties away would drive to see. I recall lying in bed, wearing my Dr. Denton pajamas and watching the jalousie glass of my bedroom window flair up with bursts of white light as the headlamps of cars moved down and up my street.

As the evening wore on toward midnight and the traffic subsided, I would take just a few steps down the walkway from my front door, cross the swale into the street, and my eyes would fill up with the sparkling colors of this fairy-bush. Pure magic.

Happy Holidays!

Steve Gladstone

Sight Becomes Imagination

Sighted people who read a novel are essentially blind. They don’t see the actual characters they’re reading about. They are also blind when they listen to the radio. However, the words they read or hear may trigger vivid pictures in their head.

As they read, sighted folks will unconsciously cast the good guy, the bad guy and the girl with specific features and expressions (especially from those sexy passages) based on previous images stored in their memory banks.

People, color, places and things come alive in our minds; we mentally assemble a person or animal or bus or autumn tree or white picket fence as our unconscious pulls from our stockpiled memories.

Of course, the imagined characters in your head don’t match the real ones. You go to see the movie adapted from the novel and say, “Yikes! I didn’t picture Portnoy looking like that!” Or you hear the jazz musician’s deep raspy voice on the radio and conjure up a large, big-cheeked bald headed dude and then see him on some late night talk show a month later and he’s a little man with brown curly hair and narrow eyes.

At times, imagination can be more satisfying than the real thing.

Perhaps you’ve been speaking to a business associate for months on the phone and when you finally meet for the first time, the nice smile you imagined is loaded with bad teeth or the long skinny fingers you pictured suddenly become fat clammy hands.

Having now lived the first half of my life sighted and the second half as a blind man, I often reflect on the transition from being sighted to being blind – what I saw and didn’t see during those transition years. When you gradually go blind, there is that grey period when you wonder if you saw things or if it was, as the song says, “just my imagination running away with me.”

Since imagination and the real world are two different places, in which world was I living? And which had the better view?

That five year period of time when I was losing the remainder of my sight started around the release of the first Star Wars movie. I still wonder if it was in my eyes or my imagination where I first saw C-3PO and R2-D2. In my recollection is a tall metallic guy next to an industrial looking vacuum cleaner, the sci-fi equivalent of Laurel and Hardy.

So now my day-to-day world is pretty much like a big radio that’s always on – disembodied people becoming three-dimensional in my head. I speak with somebody and their voice takes physical shape – my imagined image often quite a bit more colorful than the actuality. I recall working with Donna many years ago. She had a rough voice and smelled of cigarettes and drove our service truck. Yep, now you’ve got the picture. So when she gave me her smooth and petite hand to shake one day, I was flummoxed – she instantly transformed from someone with half a Y chromosome into a princess in distress.

Even though the reality doesn’t match the imagination, I often find people expecting me to be spot on when describing some person I just met, as if they are in the presence of a sorcerer. I must admit, I have resorted to artifice at times, asking a friend to secretly describe the new person to me first so when I’m later asked to give their description, I nail it and amaze the chumps gathered around to hear me wax on like some wizard.

Heck, even in college when I couldn’t see so well, I’d ask a pal for the specifications of the coed I was chatting up so that at the opportune time, I could tell her what she looked like, Impress her with my paranormal powers, and maybe get lucky.

So while you sighted folks read your novels, we blind guys listen to our talking books and converge on our imaginations, where sight has no advantage for either of us.

This Ability

You read it right: this ability. What I can’t do is see.

What I can do is act, write, sing, dance, tell jokes (my best virtue), run a business, listen, observe human behavior, give guidance to my adult children, love, shop for groceries, and water my plants. I can also clean my house (but avoid doing that as much as possible).

I’ve found that most of the world sees my disability first – blindness trumps all my other abilities until people get familiar with me. And then something curious happens – they forget I’m blind.

Often a pal will walk away from me when we’re out and about. We stop to put our plastic bags in the recycling bin in front of the supermarket and my pal takes off without me. Funny stuff. I simply call out, “Hey, did you forget something?”

I’ve always found it curious that folks in our society create an instant opinion of others based on skin color, gender, disability…hey, even clothing, before the first words are uttered between the two parties.

Years ago, when I was selling consumer electronics, an unshaven customer walked into my shop wearing cut-off jeans, flip-flops and a torn sweatshirt. All my salespeople ignored him until he asked for some help. I immediately gave him my full attention. An hour later he was out the door with a $4500 stereo system. Turns out he was an attorney, satisfying his inner slacker on his day off. My sales guys were miffed.

I suppose it’s our nature to judge folks before we get to know them. Must be in our DNA. Where disability is concerned, the ruling seems to be if one part of you is broken, the rest of you must be broken too.

It has occurred to me that Franklin D. Roosevelt might not ever have been elected President if TV sets were abundant in the 1930s. People seeing a man in a wheelchair might have had serious doubts that he could lead this country out of the Great Depression or be a strong Commander-in-Chief as we entered World War II.

Imagine seeing a woman in a wheelchair and instantly becoming interested in her skills rather than her method of ambulating. And then maybe also finding out that she plays basketball and is a med student too. It’s about what we can do, not what we can’t do. It’s about this ability.

By the way, I now only give guidance to my grown children when they ask for it. Unsolicited advice from anyone is unwanted, especially from blind fathers with this ability.

Inclusion

Cast Photographs by Mitchell Zachs Photo of Geordi La Forge courtesy of www.stagefisher.com

I think about the crew of the starship Enterprise – Asian, African, Russian, Scottish, Vulcan, American – and the perhaps elegantly unintentional message it sent: Diversity can run one of the most powerful starships in the universe.

Then I recalled a Star Trek episode with the paralyzed Captain Pike – dependent on a brainwave-operated wheelchair. And in Star Trek: The Next Generation, there’s blind Lieutenant Commander Geordi La Forge, with a super-bad visor that allows him to see.

The series got it right. Ability is what counts, not race, nationality, gender, age or disability.

That was the 23rd century. Fast backward to the 13^th century.

The year is 1236 AD and the place is Cordoba, Spain. Christians, Muslims and Jews have been living in this town for hundreds of years, coexisting peacefully, tolerant, respectful and appreciative of their differences.

This medieval world is illuminated in a new play, Everybody Drinks the Same Water, having its premier at the Miami Theater Center in Miami Shores. It is historical fiction centered in Cordoba, “The Ornament of the World.” There are aqueducts (built by the Romans) bringing clean water into public baths, fountains and homes. Serious advancement is occurring in philosophy, medicine, architecture, science and law by the multi-racial and multi-cultural inhabitants of this progressive medieval city.

The terribly handsome guy in the turban is yours truly, playing the Qadi, a Muslim judge. The Qadi is also blind. Kudos to artistic director Stephanie Ansin for creating such diverse characters and casting diverse actors to play these roles.

As a performer with a disability, I’m abundantly aware of the lack of characters with disabilities on our stages and big and small screens. For example, there is a massive gap between the 13% of Americans with an obvious disability, and the less than 1% of prime time disabled series regulars on broadcast TV.

The crazy next-door neighbor, the DNA expert, the girlfriend, the eccentric grandpa, the guy eating beef stew, the lawyer, and the hundreds of other roles that are being cast every day around this country, don’t specify a disability. But they could be played as a character with a disability since there are many disabled folks who are these people in the real world.

A major problem is that the mindset of most story-makers is that if a character with a disability is featured, the story must somehow be about their impairment. Not! The most interesting stuff happens when there is no attention paid to the disability and the dialogue remains focused on the character. Once the focus is taken off the disability, the character is no longer a super hero or victim, but a fully realized being, with an extra dimension.

What is cool in our play is that there is no reference to my character being blind. He is a central Muslim figure in a city of 500,000 people, going toe to toe with the new Christian ruler, Queen Berenguela.

I perambulate around a movable rectangular platform that sits atop the stage. It is also positioned on a 30 degree angle. Many directors would be leery about having a blind actor on this surface. Not Stephanie. She is focused entirely on the total character. She gets it right.

Inclusion, diversity and tolerance – that’s the way of the world. And our theaters, films, television and other media serve us well when the people on the stage and screen look and sound like the people who are watching the show.

Broken Glass

photo by George Schiavone

I just finished stuffing some tuna fish into a green pepper, when I bumped my dish strainer and a glass plate came crashing down on the tile floor in my kitchen. I could hear it shatter into a zillion pieces. “Don’t panic, don’t move,” I thought, “and eat your lunch.”

I did and it was tasty. The problem was that the thousand shards of glass were still there after I finished eating.

I employ magical thinking at every opportunity, and when that doesn’t work, I turn to wishful thinking. I believe these sorts of sophisticated thought strategies are practiced by most everyone. A fine example of this is the decision we all make everyday whether or not to wash the dishes right after eating, or wait till tomorrow. If we wait till morning, the dish-fairy might just get them done for us.

Usually both the magical and wishful tactics come up short in solving real problems, and then I find myself resorting to reality, which is not as flexible as the magical approach. So, the myriad slivers of glass didn’t all by themselves suddenly wind up in the garbage can, migrate to a neat little pile to be sucked up easily into a vacuum hose, nor did they find their way back together again into a useful saucer.

What to do. Blind and barefoot in a kitchen with broken glass frosting your floor is a difficult situation.

Rule 1: Obtain a layer of protection. Rule 2: Move slowly. Rule 3: First, finish your lunch.

Fortunately, within arm’s reach were some paper towels. I grabbed several, crouched low and slowly ran the paper towels along the floor, moving the sharp little slivers aside and creating safe passage out of the kitchen. All 3 of my “call-me-anytime-if-you-need-any-help” neighbors were unavailable. I put up a blockade at the entrance of the kitchen so my guide dog Billy wouldn’t wander in. Six hours later, a friend swept and vacuumed my kitchen floor. I suppose she was a fairy of sorts.

So, when you’re blind and live alone and your dog throws-up, what do you do? Yep, magical thinking aside, obtain a layer of protection and move slowly (with some Lysol spray in tow). But first, finish your lunch.

Arriving a Day Early

(photos courtesy of George Schiavone) I’m traveling for an organization which recently issued a bulletin indicating the specific travel dates to all participants. This prompted the following email thread. The names have been altered to preserve the identity of the questionable.

Sarah is an administrative Executive for the organization. She knows I am blind.

From: Steve Gladstone

Sent: Thu September 26, 2013 1:52 AM

To: Sarah Wood

Subject: Atlanta travel

Hi Sarah,

I’ve been authorized in the past to travel a day earlier than posted. I wanted to verify this with and through you that I will be traveling to Atlanta on Thursday October 24 instead of Friday October 25, 2013. Please confirm.

Thanks,

Steve Gladstone

From: Sarah Wood

Sent: Thu September 26, 2013 7:50 AM

To: Steve Gladstone

Subject: Re: Atlanta travel

Hi, Steve. Your first engagement is 7:00 pm on Friday and you are traveling in the same time zone on a relatively short flight. For this and future reference, do you mind providing detail as to necessity for coming in a day early? Thanks.

Sarah

Sent from my iPhone 

From: Steve Gladstone

Sent: Thu September 26, 2013 5:28 PM

To: Sarah Wood

Subject: RE: Atlanta travel

Sure. When I'm traveling to a new environment, there is a process I go through to orient myself. For example, when a person can't see, finding a shuttle or taxi from an unfamiliar airport to an unfamiliar hotel, takes time. Gotta talk to a lot of strangers, who are always most helpful, even though there is always a fair amount of backtracking to do.

Once at the hotel, I go through the following routine:

1. Find a hotel person who can escort me to my room and show me:

1. How to unlock the door – if The card key goes into the slot vertically or horizontally, the rhythm of how slow or fast to pull it out of that slot... then I have to mark the bottom left corner of the card with a piece of tape so I know where the top is so I can position it correctly. Gotta practice this a few times.
2. Tour the bathroom to find the soap and distinguish between the little bottles (once I washed my hair with body lotion), learn how the shower works, where to find the toilet, the toilet paper, the sink, the towels and the trash cans, then onto the bed, the drawers, the closet and the do not disturb sign.
3. Where the thermostat is and how to work it. Some of them can be very tricky as they might move in 1/2 degree steps (I think that was Detroit), some are digital, some have knobs, some have all the controls inside a panel, etc.
4. Next is the desk, how to operate the hotel phone, where outlets are so I can plug in my devices, how to work the TV remote control (that alone takes a good 10 minutes and I don't even watch much TV but I use it to fall asleep at night and that sleep mode is tricky to operate).

2. Once I have memorized all the above, I then ask my hotel employee helper to show me the way from my room door to the elevator so I can count the number of steps it is from those 2 points. Unfortunately I must do this a few times with my helper to set it in my guide dog’s mind. What is cool though is that my dog Billy, once he learns this route, gets me from my room to the elevator fairly quickly on subsequent trips. He’s pretty impressive!

3. Now I must learn the elevator. Oops, I forgot, I first have to learn where to find the up and down elevator buttons. If there is a plant or framed picture near the buttons, that helps. Invariably they are on a wall and may be between the first and second or the second and third elevator, and when there are 2 banks of 3 elevators facing each other, it gets real tricky. I need to mark whether or not I turn left or right depending on which elevator I exit to get back to my room. (I think it was also Detroit where the elevator buttons weren’t even on the wall but on a pillar in the middle of the room in front of a bank of elevators. I'm certain the person who designed this lobby didn't have any blind relatives or friends, though maybe possessed an abnormal sense of humor.)

Now to the elevators. When there are 6 elevators operating, you gotta listen real closely to catch the one that is opening. Some of them are pretty quiet. Billy does a good job getting me inside once I give him the command to “find the door.” Each panel in each elevator in each different hotel takes time to learn. It sometimes annoys folks because I ask the hotel employee helper to push the "hold door" button while I learn the panel. But I do learn it fairly quickly. BTW, some panels have Braille on them but the panels tend to be waist high and I’m a tall guy so I prefer not dropping to a knee to read the Braille and I just count buttons. It’s a little quicker that way.

4. Once I'm on the ground floor…  Oops, I forgot to mention that the last hotel in New York where I had to take 2 elevators to get to the ground floor took extra time... we count steps again to get outside and now we have to find an area where I can relieve my dog. In Chicago it was very tricky as there was no grass anywhere. We had to use an alleyway. Again we have to walk this route several times so my dog and I could do it alone. Of course, we need to identify a strategic trash-can along the way for Billy’s scooper bags.

5. The rest of the orientation like finding the hotel restaurant, snack store, etc. requires the step counting thing. You might be saying, “Wow! There are several routes that all have different step configurations to memorize,” and while this is true, after walking them all a few times it gets easier. It's the initial patterning and learning that take the time up front and that is why I appreciate coming in a day early. Oh yeah, when I get back to my room, it takes a little time to plug my stuff into the electrical outlets. I have to use my fingers to find the slots where the prongs go and... well, this is a very slow process as you can imagine.

Could I do this all on same day to attend an evening meeting? Sure. It is taxing to do it same day and I appreciate the low stress option of coming in a day early to orient myself.

No one has ever questioned the necessity for me to come in the day before. They always just said o-k when I requested it. Thanks for taking the interest. And if you need any further clarification, don't hesitate to ask me.

Steve

 From: Sarah Wood

Sent: Fri September 27, 2013 6:12 PM

To: Steve Gladstone

Subject: RE: Atlanta travel 

I hope I didn’t offend you with the question and really I was not looking for such a thorough explanation, just something to put in a file so that next year we remember to budget for this since it’s the first time I’ve learned of the extra night request for you.  Now that I have the information and it will be in the file, my hope is to not pester you with further questions about it.

 And yes, the buttons in Detroit were quite frustrating, even for one with decent eyesight – I turned circles before I figured out those darn pedestals had the up and down buttons on them.   

Have a good weekend.

Sarah

Sent from my iPhone

When “The Best, Nothing Less” Ain’t the Best

ice cream

Photo by George Schiavone

Blind folks run a little bit late just like sighted folks.

Yesterday I received an important call at 10:45 a.m. for which I had been waiting for 3 days. It was a productive call. It was 11:15 a.m. when I hung up.

My county transportation was scheduled to pick me up between 11:28 and 11:58 for my dentist appointment so I hopped like a bunny into the shower, hopped out with bunny-like intensity, and started dressing at an impressive clip. The doorbell rang and still in bunny mode, I opened the door and there was my driver announcing that he was here to pick me up. I told him I needed 5 minutes; he growled but said, “Ok.” I asked him what time he had and he replied, “11:31.” Stay with me on this one. I finished up, grabbed my dog and my backpack, and on my way out the door I punched the button on my talking watch and the voice announced, “It’s 11:36.” Yep, you’re one step ahead of me – he was gone.

The Rules

When you rely on public transportation, you gotta make your reservation by 5 p.m. the day before you ride. No same day reservations. This does help you get organized but kills spontaneity. Like, you get a headache tonight and have no aspirin. You’re pooched for a day and a half before you can get to the aspirin store.

When you do make your reservation for the next day, Central Office Command gives you a half hour pickup window. This means that in a perfect world the driver will pick you up anytime within that window and deliver you to your destination on time. The driver is required to wait for you for 5 minutes from the time he arrives before he can leave without you.

The Facts Your Honor

My pickup window today was 11:28 to 11:58. The driver arrived at 11:28, rings my doorbell at 11:31. I say I’ll be out in 5 minutes. He says ok. I’m out at 11:36 and he’s gone.

The Verdict

The driver didn’t break any rule. He was allowed to leave at 11:33.

I called the county transportation company to have a meaningful conversation about the real world, The Golden Rule, and reasonable flexibility, which are generally meaningless except when you are adversely affected. I reached 3 different message machines of various official company people, all of whom say in their voice message that “we are committed to providing our best, nothing less.”

When a county rep called me back, I suggested that the company’s “best” needed some rehab and introduced the concept that “I’m not a PIN, I’m a person.” He appeared to listen, mentioned processes in the works to avoid problems like mine in the future, and wanted me to have a nice day. The last part was hard to do with a throbbing tooth.

Summation

There was actually one rule (besides The Golden One) that the driver did break. It was the rule that states: Be a standup guy and when you know a client is inside their house and is definitely coming out very very soon, don’t leave without them you big serious major-league a**hole.

Conclusion

When sighted folks run late, they hop into their car and take off. When blind folks run late, they go nowhere – stuck, stranded, grounded, trapped, marooned.

In all fairness, many drivers go that extra mile and bend the rules where they can be bent. But it always seems for that one real important appointment, you get that driver with GRIS (Golden Rule Impairment Syndrome).

When a company adopts a motto, they ought to take great care to see if it can be followed in the real world. Otherwise they start to look silly to their customers. This public transportation company is more accurately committed to: “The Best Most of the Time, Nothing Less We Hope.”

Getting around town without a car can be a bit inconvenient – hells bells, actually a lot inconvenient. Say you want to pick up some fish to cook for dinner tonight. Without a pal to schlep you to the nearby super market you're pooched.

Speaking of pooches, after 7 years living across a very busy street from Publix, I’m now attempting to cross it with Billy the Dog. He’s reliable. I’ve learned not to buy ice-cream when I take public transportation because they are too often late picking me up. But they’re allowed to be. Where’s the justice!

Retrievability

all photos courtesy of George Schiavone The sighted world does not put stuff back where they found it. Something placed just a couple of inches away from its designated spot can send a blind person on a sometimes endless wild goose chase to find it.

 The Toothpaste

Your toothpaste put down by your sighted wife a foot away from its usual spot just to the right of the sink, can be annoying, and if placed on the other side of the sink, grounds for divorce. I recall once picking up the toothpaste in its correct spot, twisting off the cap, squeezing a dollop of paste onto my tongue, and brushing with abandon. Within seconds my tongue and lips were numb, the understandable result of brushing my teeth with my wife’s diaphragm jelly.

The Housekeeper and the Spray Cleaner.

Housekeepers can be really difficult because the blind person assumes the HK automatically understands the importance of putting stuff back. And if not, surely once you point out the importance of doing so, they get it. But sometimes they don’t.

I had a HK who wouldn’t put my spray cleaner back in its place all the way to the left under the kitchen sink – possibly the easiest spot for a retrievably impaired sightling to remember. After the third time addressing her baffling behavior, I asked her why she wouldn’t put the cleaner back in the same place. She apologized again, but this time also asked: “Why do you need it?” Once my brain cooled down from almost bursting into flames, I asked her what happens if my dog vomits, or I spill something nasty on my counter, or have to clean the singed hair off the top of my head after combusting from being asked a really dumb question? I can’t report with certainty if the deer –in-the-headlights look was on her face, but the long pause before she spoke again suggested that she was beaming with that special look.

Solution

After the fourth time my spray cleaner was missing, I bought a second bottle and hid it in my second bedroom closet. It’s always there, steadfast and ready for action.

I’m no longer married and that particular housekeeper no longer works for me. I can’t say it is just because they didn’t put stuff back, but there is certainly something missing in my life for which I am most grateful.

Practitioners of Retrievability

My two children are naturals at “retrievability” (a term coined by my buddy George) – putting things back in their specific spot so you can retrieve them easily with no angst or drama. Maybe that’s the key – train ‘em when they’re young. Unfortunately, blind parents aren’t in the majority, so there are only a few thousand adults, who were once children of blind parents, who practice this time honored tradition of putting stuff back.

I do notice that I do not constantly search for my keys and my cell phone like most of my sighted friends do. One of my pals actually puts his keys in my refrigerator when he comes over to visit. He is a practitioner of retrievability.

For blind folks, retrievability is survival; for sightlings, it’s a good idea.

Another equally troublesome behavior is when someone brings something to you and says, “I’m putting it on the table.” A table’s a big place. “I’m putting the candy on the corner beside the fruit bowl,” is much better. Or when you ask where something is and you’re told, “It’s right there.” “There” means nothing to a blind dude.

I once thought that these curious behaviors were compliments to me because the sightling forgot I was blind and was treating me like a sighted person. I realized I was mistaken when my dog recently threw up on my hall carpet and I hopped over to the cabinet below the kitchen sink and once again reached down into that empty void where the spray cleaner belonged.

My kids get agitated with me because I ask them after the fact if they put things away, turned off the lights and cleaned up their mess. But they are all forgiving as they know of my ongoing struggle with the sightlings of the world who put stuff down randomly, carelessly, arbitrarily, haphazardly, passive aggressively, aimlessly, casually, indiscriminately, indifferently, thoughtlessly, unintentionally, inadvertently, erratically, insensitively, or inconsiderately.

And so my daughter said, “Everything is clean, the trash is in the trash, and all the lights are out,” as she left my house last night. Ah!...a moment in Utopia.

It's Good to be King

All Photographs by Daniel Bock

I’m again playing King Silvio in The Love of Three Oranges, a curious little play that is based on an old Italian Commedia scenario by Carlo Gozzi. (Commedia dell'arte was a popular form of theatre in 16-18th Century Europe, performed on outdoor stages and based on comic sketches and stock characters – a sort of old world Saturday Night Live.) Three Oranges was turned into an opera by Prokofiev, which premiered in Chicago in 1921. And now the play has migrated to Miami.

When I was first offered to do this show several years ago, director Stephanie asked me if I would like to play the King as blind. Being proud to pretend to play sighted characters, my knee-jerk reaction was to play him as written (old but sighted). Then I got to thinking about this opportunity. And why not? I’m a blind guy.

This begs the old conflict I’ve had for most of my acting life. Since the vast majority of the characters written into plays, movies and TV are not disabled, my mind-set has always been to audition ‘sighted.’ Actually, when I first started going blind, I used to try and hide the fact that I could barely see. It only occurred to me later in my career that many nondescript characters could easily be in a wheelchair, deaf or blind – provided of course that the director had the imagination to picture it. When I auditioned for the role of Teckie, a forensic analyst, in the movie The Specialist, the director liked the idea of turning the character into a blind audio wonk. I was hired and played alongside James Woods. My first guide dog, Recon, was also framed in the scene.

Of course, one has to land the role initially…you’ve gotta be an actor first and then a blind guy somewhere around number 6 or 7 down the list.

I was recently contacted by a deaf actor who was discouraged with the business and asked me about obstacles that I had encountered as a disabled performer. I told him that the biggest obstacle I had faced was people. Casting folks will prejudge you, or will wonder “why the agent sent a deaf guy,” or just simply lack the ability to imagine the extra layer of character that a disabled actor might bring to the role. However, I suggested that he had the benefit of low expectation. By nature, when disability walks (or rolls) through the casting door, expectations of those in the room will naturally drop. Getting in the door can be tricky, but once you do and show them something special, the element of surprise kicks in and they get interested real fast. The message: be an actor first. Study and hone your talent so that you're ready to kick butt when that audition comes up. I also reminded him that all actors, disabled or non-disabled, experience rejection on a routine basis. That’s the biz. Besides, rejection is one step closer to a gig.

So now, as an older actor, I’m happy to ease into a blind character role.

I’m the blind elderly monarch of Lugubria and my only son and heir to the throne, Prince Tartaglia, is dying of terminal hypochondria. If he is not cured, my crown will pass to my evil niece, Clarice. A pair of mystical doctors suggest a cure: “Make the Prince laugh soon.” My servant and adviser, Pantalone, helps me with a plan to hire the funniest man in the kingdom, Truffaldino, to make the Prince laugh. Pantalone leads me back and forth as we work out the details, and with a “5-6-7-8,” we dance off singing, “The Prince is going to live forever, forever, forever, forever more!”

Truffaldino is successful in making Tartaglia laugh, but the bad witch, Fata Morgana, creates another obstacle. She puts a curse on Tartaglia which causes him to search across the world for three Oranges, which are seemingly impossible to gather up. It turns out that one of the Oranges is actually a Princess, Ninetta, who was previously turned into an Orange by that pesky Fata Morgana. I bring Smeraldina, Fata’s servant, and Clarice to trial, both implicated in attempting to prevent the Prince from ascending to the throne. In order to preside over the formalities, I must move alone from up stage right to a table down stage center. To avoid taking a nasty spill onto the lady in the first row, Princess Ninetta takes my hand and points it at the corner of the table as she explains to me her plight and her desire to marry the Prince. When she moves away from me, I orient myself to my hand and make the dramatic cross down to the table. After exposing the bad guys, I announce that it’s time to celebrate a Royal wedding and everybody dances a wild tarantella. I step with the cast in a line for the first part of the dance. Then Clarice turns and aims me at my Royal footstool and I skip down to it and continue stepping lively.

Blind or not, it’s good to be King.